Showing posts with label disability in fiction. Show all posts
Showing posts with label disability in fiction. Show all posts

Sunday, 29 January 2017

Crowdfunding Appeal: Please Support Cull by Tanvir Bush

Making a crowdfunding pledge is always a bit of a gamble. You are agreeing to back something that you like the sound of, but unless others do the same, there is no guarantee that your support will make a difference. I made my first foray into crowdfunding four years ago when I backed indie documentary 'Best and Most Beautiful Things'. When I received my copy of the film earlier this year I was delighted that my gamble had paid off. You can read more about this wonderful film here.

I backed 'Best and Most Beautiful Things' because it promised to depict blindness in creative and unsentimental ways. Too many representations of blindness in film and fiction trot out tired stereotypes which do nothing to change the largely negative ways that society sees blind people. If we want these attitudes to change, it is essential that positive images of blindness become more prevalent. This is a crucial means of ending discrimination against disabled people. The new satirical novel Cull by partially-blind writer and film-maker Tanvir Bush has the potential to do just that. Not only does it feature a partially-blind heroine but it is billed as 'a fabulous, funny, sharp, outrageous satire about the deadly dark side of discrimination'. And it is endorsed by Fay Weldon. What's not to like?  In addition, the synopsis sounds very promising indeed:
Alex has a problem. Categorized as one of the disabled, dole-scrounging underclass, she is finding it hard to make ends meet. Now, in her part time placement at the local newspaper, she’s stumbled onto a troubling link between the disappearance of several homeless people, the new government Care and Protect Bill and the sinister extension of the Grassybanks residential home for the disabled, elderly and vulnerable. Can she afford the potential risk to herself and her wonderful guide dog Chris of further investigation?
 And the excerpt is definitely worth a read. Having enjoyed Bush's first novel Witch Girl, I know she can write and I'm convinced that this is a novel that needs to be published. I've made my pledge. Will you? Click here to support Cull.

Wednesday, 11 January 2017

Audio Books and Disability Gain

The Poisonwood Bible by Barbara Kingsolver is a wonderful book. And it is a powerful example of the value added to a book by its audio version. It is the story of a family - a father, a mother and four daughters - who move from America to the Congo in the early 1960s. The father, a Baptist missionary, wants to bring the word of Jesus to the people of the village. The women just want to survive. The novel is full of rich descriptions of the plants, animals, food and inhabitants which the family encounter in their new home on the edge of the Congolese jungle. Especially when listened to, it is an immersive and sensual account of place.

The story is told by five alternating voices as the mother and her daughters take turns to speak directly to the reader. All the women have distinctive ways of speaking and they all relate to language in intriguingly different ways. These differences are brilliantly reflected in the audio as the narrator – listed as Robertson Dean (although I have my doubts about this: see * below) – uses different intonation and rhythm for each character. The distinctions made by the audio voice are so strong that when I skip between sections of the book, I can tell which of the five characters is speaking without referring back to the chapter heading introducing them.

But here we come to a problem, one which I blithely skipped over in my previous post about audio books. What should I call the person, in this case, (apparently) Robertson Dean, whose voice I hear in my headphones as I listen to the story? S/he is a reader, but not in the same sense as me, or in the sense of the notion of 'reader' used by literary critics when discussing a text's impact. S/he is also a narrator, but again not in the sense that literary critics use the term: unlike Kingsolver’s five narrative voices, the audio narrator is external to the story, yet also part of it through the voices s/he creates and his or her presence in my head. (We might call this collapsing of outside and inside the audio equivalent of free indirect style). The audio narrator is also a storyteller, in that s/he tells me the story, but as both Kingsolver and her five fictional narrators are also all story tellers, we need a way of distinguishing between them. So what word can I use to describe the work and function of the audio narrator? From now on, and to avoid the kinds of confusion alluded to above, I will use the French word conteur (male) or conteuse (female) – a word meaning variously teller of tales, oral storyteller, out-loud narrator - to refer to the person who has recorded the audio version of a book.

Back to The Poisonwood Bible: the text is particularly suited to being listened to because of its poetry. Adah in particular speaks in rhythmic prose poetry, frequently reversing lines of text or creating long poetic palindromes. Kingsolver plays too with the resonances of the three languages which the family encounter. Their native English becomes increasingly mixed with the French of the Belgian colonizers and the Kituba or Kikongo spoken by the village’s inhabitants. One of the most astonishing benefits of listening to a text rather than reading it is the way its patterns and sounds surround and bewitch you: for days during and after listening to The Poisonwood Bible I have had new words, like maniop, kakakaka, bangala and mongosi scattered through my thoughts and dreams.  I cannot write with the poetry of Kingsolver but I can urge my readers to aurally immerse themselves in this powerfully evocative world.

As well as being an epic story of the effects of colonization, the battles for race and gender equality, the dangers of military rule and the difficulties of democracy, The Poisonwood Bible is also a powerful celebration of disability through the story of Adah.

Despite her final, silent ‘h’, Adah is proud of her palindromic status (indeed I did not know about her ‘h’ until I read about the novel on Wikipedia). She calls herself Ada. Like me Ada is a palindrome, and like me, she is asymmetrical. She was born ‘crooked’ (she has hemiplegia), she walks with a limp and she does not speak until adulthood. Indeed, her palindromic status makes her a poet: she reads front-to-back and back-to-front and her world is full of a magic that she loses when she is later ‘cured’. Most people judge Ada by her physical appearance and treat her as a slow and backward child. She is often forgotten or left behind, most notably on the terrible night of the ant invasion. But her voice - which only the reader hears for much of the narrative - is full of wisdom and wit. As an adult, Ada is cured of her limp and begins to walk ‘normally’. Whilst her family and colleagues are delighted by her new able-bodiedness, Ada herself feels like she has become a different, and less interesting person. Her response to her ‘cure’ resonates strongly with my own feelings about disability gain, exemplified for me by the power of the audio book:

I am still Ada but you would hardly know me now without my slant. I walk without any noticeable limp. Oddly enough, it has taken me years to accept my new position. I find I no longer have Ada, the mystery of coming and going. Along with my split body drag I lost my ability to read in the old way. When I open a book the words sort themselves into narrow minded single file on the page. The mirror image poems erase themselves half-formed in my mind. I miss those poems. Sometimes at night in secret I still limp purposefully around my apartment like Mr Hyde, trying to recover my old ways of seeing and thinking. Like Jekyll I crave that particular darkness curled up within me. Sometimes it almost comes. The books on the shelf rise up in solid lines of singing colour. The world drops out and its hidden shapes snap forward to meet my eyes. But it never lasts. By morning light the books are all hunched together again with their spines turned out, fossilized, inanimate. No one else misses Ada. Not even Mother. She seems thoroughly pleased to see the crumpled bird she delivered finally straighten out and fly right. ‘But I liked how I was’, I tell her. ‘Oh, Adah, I loved you too, I never thought less of you, but I wanted better for you’. Don’t we have a cheerful, simple morality here in Western civilization. Expect perfection and revile the missed mark. Adah the poor thing. Hemiplegious, egregious, beseigious. Recently it has been decided, grudgingly, that dark skin or lameness may not be entirely one’s fault. But one still ought to show the good manners to act ashamed. When Jesus cured those crippled beggars, didn’t they always get up and dance offstage, jabbing their canes sideways and waggling their top hats? Hooray! All better now! Hooray! If you are whole, you will argue, why wouldn’t they rejoice? Don’t the poor miserable buggers all want to be like me? Not necessarily, no. The arrogance of the able-bodied is staggering. Yes, maybe we’d like to be able to get places quickly and carry things in both hands, but only because we have to keep up with the rest of you or get the Verse. We would rather be just like us, and have that be alright. How can I explain that my two unmatched halves used to add up to more than one whole? (The Poisonwood Bible chapter 13)

* Robertson Dean is credited with the narration of the audio book but I spent the whole novel convinced I was listening to a female conteuse. Having listened to samples of Dean’s other work on the audible website, I am struggling to believe that he is the conteur of Kingsolver’s work. 

Monday, 11 July 2016

Book Review: 'Jules' by Didier van Cauwelaert


Since I discovered his Goncourt-winning Un aller simple in 1995, I have always loved Didier van Cauwelaert's quirky, touching and gently ironic novels. But my heart sank when I learnt that his most recent work Jules (Albin Michel: 2015) tells the story of a blind woman whose sight is miraculously restored. I was worried that this would be a simplistic celebration of the cure whereby Alice's new sightedness would bring her all the happiness and hope denied her by her blindness.

The novel's opening page did nothing to allay my fears. When the sighted narrator Zibal first glimpses still-blind Alice, his lascivious gaze objectifies her by its insistence on her physical appearance:

Hauts talons canari, minishort rouge et top turquoise, elle ne risquait pas de se faire écraser par temps de brume. N’eût été le labrador qui la guidait au bout d’un harnais, ses grandes lunettes noires seraient passées pour un accessoire de star soucieuse qui son incognito se remarque. Les cheveux blond-roux maintenus par un chignon en broussaille, les seins libres sous la soie quasi transparente, un sourire de rendez-vous amoureux allongeant les bavures de son rouge à lèvres, c’était une aveugle particulièrement voyante qui faisait bien davantage envie que pitié. (Jules, Didier Van Cauwelaert (Paris : Albin Michel, 2015, p. 7)
Zibal’s emphasis on her physical appearance reduces Alice to nothing more than a collection of sexual attributes without taking any account of her personality, context or even name. She is nothing more than an anonymous ‘aveugle’ who is completely defined in relation not only to how she looks to him but also how she does not look at him. In addition, the form of the text further emphasizes Alice’s objectification. She appears to be defined according to the controlling gaze of a male first-person narrator whose words are motivated by his desire not only to possess her sexually, but also to possess her metaphorically by capturing her in and via his text. This dual act of possession is rendered possible precisely by the very thing which makes Alice attractive to the narrator, namely her blindness. Alice is unaware that she is being looked at in this way and is thus even further objectified by the silence of the controlling gaze and the conspiracy between the sighted gazer and the reader which it establishes.

Happily, this narrator-reader complicity is shattered by the irruption of Alice's voice into the text. As the narrative progresses, Alice and Zibal recount alternating chapters so that a dual first-person perspective is established which destabilizes what the reader thinks he or she knows about both blindness and sightedness. Unlike her friends and colleagues, Alice is not overjoyed when she regains her sight. Far from it. She is horrified by the world she can now see and feels abandoned and lost without her guide dog Jules:


L’enthousiasme autour de moi, l’émerveillement que suscite ma guérison me laissent un sentiment de solitude honteuse que jamais le handicap n’a provoqué. Le devoir de bonheur auquel je m’astreignais, par fierté et instinct de survie, est remplacé desormais par un simple code de décence. Je n’ai plus le droit d’aller mal. (pp. 86-7)

By regaining her sight, Alice has lost one of her defining features; she is no longer herself. It is almost as if she is in mourning for her blindness. She hates the person she has become almost as much as she hates the way her friends celebrate her cure. She sees every congratulation as a betrayal of her blind self, evidence that despite the fact that she was happy being blind, all her sighted acquaintances secretly thought she would be better off sighted.

Van Cauwelaert's sensitive depiction of Alice's reactions to her new state of sightedness is a startling reminder that blindness is not a tragedy. Through a fast-paced (if somewhat far-fetched) tale of love, loss and loyalty we meet a collection of wonderfully eccentric characters who encourage us to abandon our own misconceptions about beauty, happiness and the tyranny of appearances. Without giving too much away, this is a thought-provoking, surprising and engrossing tale about how we see each other and ourselves. Highly recommended.

Sunday, 6 July 2014

Fiction Featuring Blind Protagonists: A Bibliography

My academic research focuses on depictions of blindness in French literature. But I am also collecting examples of contemporary (ie post-2000) Anglophone fiction which features blind or partially blind characters. Below is the list of books I have read so far, along with links to blog posts I have written about some of them. More books will be added as I read them. Recommendations welcome.


  • Comby, Cristelle, Russian Dolls: The Neve and Egan Cases Book 1 (2013) Thriller featuring a sighted student and her blind professor as an unlikely detective team.
  • Doerr, Anthony, All the light we cannot see (Fourth Estate, 2014): epic, beautiful and moving World War II adventure set in Paris, Germany and St Malo. Highly recommended.
  • Elkins, Kimberley, What is Visible (Twelve Books, 2014): extremely carefully researched, beautifully written and enthralling historical fiction about Laura Bridgman, the first death-blind American to learn English. Highly recommended. Blog post here.
  • Ellen, Laura, Blind Spot (Harcourt Children's Books, 2012): young adult murder mystery featuring a partially blind protagonist / narrator.  Blog post here.
  • Foyle, Naomi, Astra (The Gaia Chronicles) (Jo Fletcher Books, 2014): sci-fi / fantasy eco-utopia novel featuring, amongst other things, a character with one eye. Blog post here.
  • Gillard, Linda, Star Gazing (Platkus, 2008); perceptive romance featuring a blind female protagonist and her sighted lover. Blog post here.
  • Green, John, The fault in our stars (Penguin, 2013): teenage cancer coming-of-age love story.
  • Halm, Martyn, V., The Amsterdam Assassin Katla Novels Series: Reprobate (2012); Peccadillo (2012); Rogue (2013): fast-paced and multi-layered thrillers featuring a professional assassin and her blind partner. Blog post here.
  • Harris, Joanne, blueeyedboy (Doubleday, 2010): dark cyber-thriller with a blind protagonist and a surprising twist. Blog post here.
  • Macgregor, Virginia, What Milo Saw (Sphere, 2014): sensitive and clever children's story where events are seen through the eyes of a boy with retinitis pigmentosa.
  • Nussbaum, Susan, Good Kings, Bad Kings (2013): honest and hard-hitting novel set in a care home for disabled teenagers. One of the characters is partially blind. Highly recommended.
  • Sedgwick, Marcus, She is not invisible (Indigo, 2013): young adult mystery thriller featuring a blind narrator. Blog post here.
  • Walliams, David, Ratburger (HarperCollins, 2012): children's adventure featuring a blind villain. Blog post here. 









Thursday, 20 March 2014

Disability in Fiction: Astra

Astra by Naomi Foyle (Jo Fletcher Books, 2014)


Astra by Naomi Foyle is a beguiling and absorbing sci-fi/fantasy novel set in a post-apocalyptic eco-utopia. It tells the compelling story of what happens when a young girl's inquisitiveness, bravery and innocence collide with an adult world of distrust, manipulation and secrecy.It also happens to be an uplifting celebration of bodily diversity and an illustration of the 'social model' of disability in action.

Astra is full of characters with what our society might call 'imperfect' or 'incomplete' bodies. One of Astra's shelter mothers, Hokma, is missing an eye, Astra's shelter father Klor has a prosthetic leg and her primary school teacher uses a wheelchair. But in Is-Land none of these characters are disabled. The hi-tech yet resolutely natural world in which they live is perfectly  accessible to all of them because it has been created with bodily difference at its core. Many of the features which Foyle has invented for her fictional world could be usefully deployed in our real one to make homes, offices, gardens and information technology more welcoming spaces for all the people who use them.

The character of Hokma is particularly interesting. Although she is offered a prosthetic eye after her injury, she prefers to wear an eye patch. Like my teenage self, she refuses to hide her 'impairment' so instead she celebrates it by wearing a variety of beautifully hand-made patches which she co-ordinates with her moods. Hokma is one of the book's pivotal characters. She is powerful, brave and intelligent. Beyond reference to her eye patches, her half-blindness is barely mentioned. This is not because she is ashamed of it. Nor is it because others find it difficult to talk about. It is because blindness is not a tragedy in Is-Land. It is a bodily difference like any other, neither negative nor positive, just there. 

Hokma is clever enough to know that not everyone sees her blindness as a simple fact. Her sinister brother is so unenlightened that he still sees her missing eye as a tragedy, something he should feel guilty about. Hokma has no qualms about using his misguided feelings against him: when she needs his help she uses references to her damaged sight to manipulate him. She is wise enough to know that disability can be used as a kind of emotional blackmail against those too weak or stupid to truly see it for what it is.

It is no coincidence that, like Hokma's brother, the book's other evil characters are those most wedded to the controversial 'medical model' of disability. The shadowy government who controls Is-Land is using a kind of high-level genetic re-coding to rid the country of birth defects of all kinds. This is a sinister and malevolent move which has echoes of both Third Reich eugenics and more recent kinds of ethic cleansing. But what I find most fascinating about this extraordinary book is the way that all the 'good' characters, including Astra and Hokma, share a refreshingly enlightened approach to bodily difference. It is as if Foyle has used her characters' attitude to disability as an indication of their importance, a kind of code which tells us which characters we can trust and which we should despise.